Top picks of interest that have been shared over the past year
LTO was invited to participate in IWMF's Patient Education Forum. The patient education forum included sessions on Understanding Your Blood Test Results, Current Treatment Options, Nutrition & Cancer Myths, Caregiver Tips and more. Waldenstrom macroglobulinemia (WM) is a type of non-Hodgkin lymphoma. Patients and caregivers rely heavily on blood tests to monitor this disease and manage treatment. LTO provided resource materials to help Waldenstrom patients and their caregivers navigate the testing process and better understand test results.
Patients Rising University (PRU) is a free online educational program developed to help patients and caregivers build self-advocacy skills, learn about their conditions, navigate healthcare coverage, and ultimately get access to the best care and treatment possible.
PRU will be producing several webinars a year on themes like: Managing your Chronic Illness, Controlling the Costs of Care, Participation in Clinical Trials, and Understanding Biosimilars. Learn more.
Scleroderma is a complex, multisystem disease that often progressively affects the skin, blood vessels, lungs, digestive tract, kidneys, heart, muscles and bones. Scleroderma is inflammatory and has an autoimmune component. It has been associated with exposure to a variety of chemical agents, but the exact cause is not yet known.
Image credit: Leith C Jones at English Wikipedia. Image of a type of Scleroderma.
Used when you have symptoms such as fever, muscle aches, and weight loss or impaired kidney or lung function that your healthcare practitioner thinks may be due to a vascular autoimmune disorder To help distinguish between Crohn disease (CD) and ulcerative colitis (UC), the two most common types of inflammatory bowel disease (IBD); as an adjunct to other IBD testing. Learn more.
Image credit: CDC, Public Domain